Genetic Information

Genetic Information Category
Components of a Letter of Medical Necessity
Medical Home Portal: Working with insurance companies
Audience: Families
 Insurance and Appeals
Newborn Screening Brochures
The following brochures provide an overview of the newborn screening process and the genetic conditions for which the panel screens, available in…
Audience: Families
 Newborn Screening
Medical Food Access Emergency Fact Sheet
Developed By: Southeast Regional Genetics Network
Audience: Families, Professionals
 COVID-19
Emergency Preparedness Toolkit for Genetics Providers and Patients
Developed By: National Coordinating Center for the Regional Genetics Networks (NCC)
Audience: Professionals
 COVID-19
Are You Ready? Preparing for Emergencies: Tips for Families
Developed By: Family Voices
Audience: Families
 COVID-19
Home Education Resource for Families of Children with Special Needs (Links homebound families caring for children with special needs with volunteer educators)
Developed By: Massachusetts Families Organizing for Change
Audience: Families
 COVID-19
Action Steps for Attendant Service Users in Response to COVID
Developed By: Center for Disability Rights
Audience: Families
 COVID-19
COVID-19 Information By and For People with Disabilities (in 11 languages)
Developed By: Green Mountain Self Advocates
Audience: Families
 COVID-19
Telewhat?: An Introduction to Telegenetics
Developed By: National Genetics Education and Family Support Center (NGEFSC)
Audience: Families
 COVID-19
Compilation of Telehealth & Telegenetics Resources
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC)
Audience: Families, Professionals
 COVID-19
Highlighting Family Perspectives on Telegenetics
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC)
Audience: Families, Professionals
 COVID-19
Homocystinuria (Classical, Cobalamin, MTHFR) Emergency Toolkit
Developed By: HCU Network
Audience: Families
 COVID-19
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered
Developed By: The Marfan Foundation
Audience: Families
 COVID-19
Critical Updates on COVID-19
Resource Developed By: American Academy of Pediatrics
Audience: Professionals
 COVID-19
Medicare Telemedicine Health Care Provider Fact Sheet
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Audience: Professionals
 COVID-19
Telehealth Coverage Policies In Time for COVID-19
Resource Developed By: Center for Connected Health Policy
Audience: Professionals
 COVID-19
Coding for COVID-19 and Non-Direct Care
Resource Developed By: American Academy of Pediatrics (AAP)
Audience: Professionals
 COVID-19
Coverage and Benefits Related to COVID-19 Medicaid and CHIP
Developed By: Centers for Medicare and Medicaid Services (CMS)
Audience: Families, Professionals
 COVID-19
States Modify Medicaid Home- and Community-Based Waivers to Respond to COVID-19
Resource Developed By: National Academy for State Health Policy (NASHP)
Audience: Families, Professionals
 COVID-19
State Medicaid and CHIP Strategies to Protect Coverage during COVID-19
Resource Developed By: National Academy for State Health Policy (NASHP)
Audience: Families, Professionals
 COVID-19