Medical and Dietary Needs

What you need to know

GERD (gastroesophageal reflux) may occur. Talk with the parents about particular foods that might be triggers for the reflux and avoid those foods if the child has more vomiting or reflux than normal. Also, if reflux is a current problem, avoid positions where the child’s head is below their stomach, such as reading while lying down.

They may have pain from constipation.

Children may have seizures. They may also have vision and hearing problems.

The severity of any one of the possible medical conditions varies widely between individuals.  Therefore it is important to ask the parents about the medical issues in their child.

School age children with RTS may have multiple doctor and specialist visits to monitor medical conditions.

No special diet is required for RTS although a well-balanced diet is important, especially if a child is obese.  Make sure, if applicable, that any special dietary requirements are followed.

Be aware, or ask parents, if the child has a medical alert bracelet.

What you can do

  • Follow any special diet that might be needed
  • Be aware of pain that may affect participation, performance, or behavior
  • If vision and hearing issues are present together (two sensory systems), consult a deaf/blind specialist. Consultants for vision and hearing may help if one sensory system is affected.
  • Avoid positions that might increase reflux (GERD) if that is a current issue or concern. This might be, for example, reading on the floor or certain PE activities.
  • A yearly check-up and studies as needed should occur in the child’s Medical Home. 
  • Be aware of any changes in behavior or mood that are atypical and notify the parents
  • It is important to be aware of any academic changes.  Contact parents when any differences are noticed.