Sadly, federal funding for the Regional Genetic Networks has ended. NERGN closed on May 31, 2024. This website will remain live until November 2025 but will not be monitored.
Key Contacts by New England State
Path CT
P.O. Box 117
Northford, CT 06472
(800) 399-PATH
info@pathct.org
The CT Newborn Screening Program
Dr. Katherine A. Kelley State Public Health Laboratory
395 West Street
Rocky Hill, CT 06067-3503
(860) 920-6628
https://www.babysfirsttest.org/
Maine Parent Federation
484 Maine Ave. 2D
Farmingdale, ME 04344
(207) 588-1933
(800) 870-7746
parentconnect@mpf.org
Maine Newborn Bloodspot Screening Program
Maine Center for Disease Control & Prevention
Division of Disease Prevention
11 State House Station
286 Water Street
Augusta, ME 04333
(207) 287-8188
(800) 698-3624
https://www.babysfirsttest.org/
Federation for Children with Special Needs
Schrafft Center
529 Main Street, Suite 1M3
Boston, MA 02129
(617) 236-7210
(800) 331-0688
info@fcsn.org
New England Newborn Screening Program
Biotech 4, 2nd Floor
UMass Medical School
377 Plantation Street
Worcester, MA 01605-2300
(774) 455-4600
nbs@umass.edu
New Hampshire Family Voices
129 Pleasant St.
Concord, NH 03301
(603) 271-4525
(800) 852-3345
nhfamilyvoices@nhfv.org
Newborn Screening Program
NH Department of Health and Human Services
129 Pleasant Street
Concord, NH 03301-3852
(603) 271-4517
(800) 852-3345 x4517
NewbornScreening@dhhs.nh.gov
Rhode Island Parent Information Network
300 Jefferson Blvd., Suite 300
Warwick, RI 02888
(401) 270-0101
info@ripin.org
Newborn Screening
RI Department of Health
301 Capitol Hill
Providence, RI 02908
(401) 222-5960
https://www.babysfirsttest.org/
Vermont Family Network
600 Blair Park Rd, Ste 240
Williston, VT 05495
(802) 876-5315
info@vtfn.org
Maternal & Child Health Division
108 Cherry Street
Burlington, VT 05401
(802) 863-7333
(800) 464-4343
https://www.babysfirsttest.org/
Education Materials
Introductions to Genetics for Parents and School Personnel with NERGN
PATH-CT
Genetic Conditions from PATH CT
Genetics Video from PATH CT
Mitochondrial Disorders Video from PATH CT
Mitochondrial Disorders - PATH CT
Cystic Fibrosis Video from PATH CT
Cystic Fibrosis - PATH CT
Alagille Syndrome Video from PATH CT
Alagille Syndrome - PATH CT
Sickle Cell Video from PATH CT
Sickle Cell - PATH CT
Kabuki Syndrome Video from PATH CT
Kabuki Syndrome - PATH CT
Congenital Heart Defects Video from PATH CT
Down Syndrome Video from PATH CT
Fragile X Video from PATH CT
Neurofibromatosis Video from PATH CT
Williams Syndrome Video from PATH CT
PKU Video from PATH CT
Newborn Screening Video from PATH CT
Autism Video from PATH CT
Summer Genetics Series - from Vermont Family Network
The Mystery in Our Genes
Newborn Screening and the EHDI Program
Vermont Resources When Navigating the Confusing World of Genetics
Back to School Tips for Children with Special Health Needs
Thanks to the Vermont Family Network for hosting their first Genetics Summer Series in August 2021!