What you need to know
Individuals with EDS may have:
- Psychological and psychosocial difficulties
- Fatigue and pain may make psychological problems worse
- Psychological distress may increase pain
- Depression, anxiety, affective disorder, low self-confidence, negative thinking, hopelessness and desperation may occur
- Depression is often associated with chronic pain, disabilities
- Individuals may feel misunderstood, disbelieved, alone
- Children may be self-conscious of physical differences
- Pain
- Pain can be a major part of EDS
- Fear of pain and joint instability may lead to avoidance behaviors, and make dysfunction and disability worse
What you can do
- Counseling and support for pain may help
- Meditation and yoga could be helpful
- Antidepressants may be helpful
- Need help with adaptation and acceptance of issues and potential limitations.