Resources

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Genetics Home Reference for Prader-Willi syndrome

Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

A recommended resource available through the Prader-Willi Syndrome Foundation is:

'The student with Prader-Willi Syndrome Information for Educators'

by Barbara Dorn and Barbara J. Goff, EdD

The mission of Foundation for PWS Research is to eliminate the challenges of Prader-Willi syndrome through the advancement of research.  High-quality research will lead to more effective treatments and an eventual cure for this disorder.  By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.

Learn more about the genetics of Prader-Willi syndrome. GeneTests is a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. 

Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.