What you need to know
- No special diet is required for KS although a well balanced diet is important.
- It is important to ask the parents about the medical issues in their child and what medical management challenges they may face at school.
- Many boys with Klinefelter are followed by an endocrinologist when they reach the age of puberty. They may be placed on testosterone treatments.
- Be aware, or ask a parent, if the child has a medical alert bracelet.
- School age children with KS may have annual doctor and specialist visits to monitor medical conditions.
What you can do
- A yearly check-up and studies as needed should occur in the child’s Medical Home.
- Be aware of any changes in behavior or mood that seem out of line and notify the parents.
- Be aware of any academic changes. Contact parents when any differences are noticed.
- Provide and seek appropriate supports as needed, whether school based or more medically based:
- Communication Supports
- OT or PT for supporting motor development, coordination, tone and sensory needs
- Supports for emotional or behavioral issues that might arise, as needed