The NERGN has endeavored to provide a limited number of resources for families, health care providers and public health professionals that are relevant to its mission. These resources take the form of definitions, publications, articles and links to other organizations, and are not intended to be a comprehensive listing. The intention is to provide useful information and to highlight some of the innovative thinking and approaches to care for individuals with inherited conditions. Providing resources to the audiences below fulfills part of the NERGN's purpose.

To view the resource you’re looking for, select the resource from the drop down menu below, then click “apply.”

Title Summary Age Group Topic
Boston Medical Center, Prenatal Genetics Provide consultation and counseling in the antenatal unit at Boston Medical Center to women who are pregnant or considering a pregnancy. Reasons for visits include advanced maternal age, abnormal nuchal translucency or maternal serum screening, medication exposures, carrier status, and family history. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Brigham and Women's, `Prenatal Genetics, Diagnosis and Counseling The Center for Fetal Medicine and Prenatal Genetics includes high-risk obstetricians, geneticists, radiologists, genetic counselors and nurses who provide assessment and counseling services before, during, and after pregnancy. Locations in Boston, Concord, Foxborough and Newton. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Care Coordination in a Statewide System of Care: Financing Models and Payment Strategies Resource related to care coordination from the Catalyst Center Child, Teen/Young Adult Insurance & Financial, Medical Home & Care Coordination
Center for Disease Control and Prevention (CDC) - Public Health Genomics Big Data, Genomics & Public Health; Genomics and Health Literacy & Education; Direct to Consumer Genetic Testing; Cancer and Public Health Genomics Child, Teen/Young Adult, Adult Genetic & Genomic Information
Center for Human Genetics, Prenatal Testing This center remains dedicated to the care of all who need evaluation for a genetic diagnosis, genetic counseling, prenatal diagnosis, carrier detection, or predictive tests. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Children's Hospital at Dartmouth - Medical Genetics The Medical Genetics Department at Dartmouth-Hitchcock provides comprehensive diagnostic evaluations, clinical management and genetic counseling for children and adults who have a genetic condition or who are suspected to have a genetic condition. Locations include Lebanon, Manchester and Nashua. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Children's Hospital at Montefiore Provides adult and pediatric genetics Child, Teen/Young Adult, Adult Genetic Clinic(s)
Children's Hospital Boston - Division of Genetics & Genomics The Clinical Genetics team at Boston Children’s Hospital provides comprehensive diagnostic services and genetic counseling to pregnant women, newborns, children and adults with a known or suspected genetic disorder. Locations in Boston, Lexington, Peabody, Waltham, Brockton, Norwood, and Weymouth. Child, Teen/Young Adult, Adult Genetic Clinic(s)
Coding and Reimbursement Tip Sheet for Transition from Pediatric to Adult Health Care (updated 2016). Transition readiness and self-care assessment are now billable under CPT code 99420. Read the tip sheet for information about this and other transition-related billing options. Teen/Young Adult Insurance & Financial, Transition
Complex Child Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. Child Support & Advocacy