COVID-19 Resources

The following list of resources are geared toward health care providers and families. We will be updating them periodically and hope you find them helpful. Please let us know if you have any questions! 

The following list of resources are geared toward health care providers. We are working on a similar list geared toward families. We will be updating them periodically and hope you find them helpful. Please let us know if you have any questions!
GENETICS CLINICS IN NEW ENGLAND

Name: Clinical Services Directory
Type of Resource: Directory Resource
Developed By: National Coordinating Center for the Regional Genetics Networks (NCC)
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks,Patients and/or Families,Public Health
Link to Resource: https://clinics.acmg.net

INFORMATION FOR FAMILIES

Name: Telewhat?: An Introduction to Telegenetics
Type of Resource: Infographic
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC)
Intended Audience: Patients and/or Families
Link to Resource: https://nccrcg.org/wp-content/uploads/Telewhat-Infographic.pdf

Name: What to Expect From a Telegenetics Visit
Type of Resource: Video
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Patients and/or Families
Link to Resource: https://www.youtube.com/watch?v=-h-XRYtLEn8&feature=youtu.be

Name: COVID-19 Telehealth Toolkit 
Type of Resource: Guide 
Resource Developed By: National Consortium of Telehealth Resource Centers 
Intended Audience: Genetics Providers,Non-Genetics Providers,Patients and/or Families 
Link to Resource: https://www.telehealthresourcecenter.org/download/3/webinars/3557/telehealth-and-covid-19-final.pdf 

Name: Compilation of Telehealth & Telegenetics Resources 
Type of Resource: Resource Repository 
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC) 
Intended Audience: Genetics Providers,Patients and/or Families 
Link to Resource: https://expectinghealth.org/sites/default/files/inline-files/Telehealth%20and%20Telegenetics%20Resources.pdf 

Name: Webinar Recording: Highlighting Family Perspectives on Telegenetics 
Type of Resource: Video 
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC) 
Intended Audience: Patients and/or Families,Genetics Providers 
Link to Resource: https://youtu.be/eYHfPq_Q3X4 

Name: Webinar Slides: Highlighting Family Perspectives on Telegenetics 
Type of Resource: Presentation 
Resource Developed By: National Genetics Education and Family Support Center (NGEFSC) 
Intended Audience: Patients and/or Families,Genetics Providers 
Link to Resource: https://expectinghealth.org/sites/default/files/inline-files/Telegenetics%20Webinar%20Power%20Point_FINAL.pdf 

State-Specific Resources for Families

Name: Wyoming COVID Resources for Families impacted by Genetic Conditions 
Type of Resource: Fact Sheet,PDF 
Resource Developed By: Mountain States Regional Genetics Network (MSRGN) 
Intended Audience: Genetics Providers,Patients and/or Families,Public Health 
Link to Resource: https://www.mountainstatesgenetics.org/wp-content/uploads/sites/257/2020/04/covid-resources-WYOMING-4_16_20.pdf 

Name: Montana COVID Resources for Families impacted by Genetic Conditions 
Type of Resource: 
Resource Developed By: Mountain States Regional Genetics Network (MSRGN) 
Intended Audience: Public Health,Genetics Providers,Patients and/or Families 
Link to Resource: https://www.mountainstatesgenetics.org/wp-content/uploads/sites/257/2020/04/covid-resources-MONTANA-4_23_20.pdf 

Name: New Mexico COVID-19 Resources for Families impacted by Genetic Conditions 
Type of Resource: Fact Sheet,PDF 
Resource Developed By: Mountain States Regional Genetics Network (MSRGN) 
Intended Audience: Patients and/or Families,Public Health,Genetics Providers 
Link to Resource: https://www.mountainstatesgenetics.org/wp-content/uploads/sites/257/2020/04/covid-resources-NEWMEXICO-final-4_13_20.pdf 

Name: Arizona COVID Resources for Families impacted by Genetic Conditions 
Type of Resource: Fact Sheet,PDF 
Resource Developed By: Mountain States Regional Genetics Network (MSRGN) 
Intended Audience: Patients and/or Families,Public Health,Genetics Providers 
Link to Resource: https://www.mountainstatesgenetics.org/wp-content/uploads/sites/257/2020/04/covid-resources-ARIZONA-4_15_20.pdf 

Name: Utah COVID Resources for Families impacted by Genetic Conditions 
Type of Resource: Fact Sheet,PDF 
Resource Developed By: Mountain States Regional Genetics Network (MSRGN) 
Intended Audience: Patients and/or Families,Public Health,Genetics Providers 
Link to Resource: https://www.mountainstatesgenetics.org/wp-content/uploads/sites/257/2020/04/covid-resources-UTHA-4_13_20-clickable.pdf 

CRITICAL RESOURCES

* New Name: Medical Food Access Emergency Fact Sheet
Type of Resource: Directory
Resource Developed By: Southeast Regional Genetics Network
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks,Patients and/or Families,Public Health
Link to Resource: https://southeastgenetics.org/covid_fact_sheet.php

* New Name: Emergency Preparedness Toolkit for Genetics Providers and Patients
Type of Resource: Fact Sheet
Resource Developed By: National Coordinating Center for the Regional Genetics Networks (NCC)
Intended Audience: Genetics Providers
Link to Resource: https://nccrcg.org/wp-content/uploads/Emergency-Preparedness-Resources-for-Genetic-Providers-and-Patients-2020.pdf

HEALTH GUIDELINES

* New Name: Critical Updates on COVID-19
Type of Resource: Website
Resource Developed By: American Academy of Pediatrics
Intended Audience: Genetics Providers, Non-Genetics Providers
Link to Resource: https://services.aap.org/en/pages/2019-novel-coronavirus-covid-19-infections/

Name: Coronavirus Disease 2019 (COVID-19) Update—Information for Clinicians Caring for Children and Pregnant Women
Type of Resource: Webinar
Resource Developed By: Centers for Disease Control and Prevention (CDC)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://emergency.cdc.gov/coca/calls/2020/callinfo_031220.asp

Name: UpToDate 
Type of Resource: Website 
Resource Developed By: UpToDate 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.uptodate.com/home 

COVERAGE AND PAYMENT FOR TELEHEALTH DURING COVID-19

Name: Medicare Telemedicine Health Care Provider Fact Sheet
Type of Resource: Fact Sheet
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/newsroom/fact-sheets/medicare-telemedicine-health-ca...

Name: Telehealth Coverage Policies In Time for COVID-19
Type of Resource: Website
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks
Link to Resource: https://www.cchpca.org/resources/covid-19-telehealth-coverage-policies

CODING

Name: 2020 Coding and Reimbursement Tip Sheet for Transition from Pediatric to Adult Health Care 
Type of Resource: Guide 
Resource Developed By: got transition,American Academy of Pediatrics (AAP) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://gottransition.org/resourceGet.cfm?id=352 

Name: Coding for COVID-19 and Non-Direct Care 
Type of Resource: Guide 
Resource Developed By: American Academy of Pediatrics (AAP) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://downloads.aap.org/AAP/PDF/COVID%202020.pdf

MEDICAID/CHIP

Name: States Modify Medicaid Home- and Community-Based Waivers to Respond to COVID-19 
Type of Resource: Website 
Resource Developed By: National Academy for State Health Policy (NASHP) 
Intended Audience: Genetics Providers,Non-Genetics Providers,Patients and/or Families 
Link to Resource: https://nashp.org/states-modify-medicaid-home-and-community-based-waivers-to-respond-to-covid-1

Name: State Medicaid & CHIP Telehealth Toolkit: Policy Considerations for States Expanding Use of Telehealth 
Type of Resource: Guide 
Resource Developed By: Centers for Medicare and Medicaid Services (CMS) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.medicaid.gov/medicaid/benefits/downloads/medicaid-chip-telehealth-toolkit.pdf 

Name: What Options for Ensuring Access and Coverage Do State Medicaid/CHIP Programs Have In a Public Health Emergency? Section 1915(c) Home- and Community-Based Service Waiver Appendix K 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-State-Medicaid-CHIP-Programs-Section-1915c.pdf 

Name: What Options for Ensuring Access and Coverage Do State Medicaid/CHIP Programs Have in a Public Health Emergency? Section 1135 Waiver Flexibilities 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-State-Medicaid-CHIP-Programs-Section-1135-Waiver-Flexibilities.pdf 

Name: What Options for Ensuring Access and Coverage Do Separate CHIP Programs Have in a Public Health Emergency? 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-Separate-CHIP-Programs.pdf 

Name: Can Medicaid/CHIP Enrollees Lose Coverage During the Public Health Emergency? Federal Medical Assistance Percentage (FMAP) Increase and Maintenance of Effort Requirements Under the CARES Act 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-and-FMAP-Increase-.pdf 

Name: State Medicaid and CHIP Strategies to Protect Coverage during COVID-19 
Type of Resource: Website 
Resource Developed By: National Academy for State Health Policy (NASHP) 
Intended Audience: Genetics Providers,Non-Genetics Providers,Public Health,Patients and/or Families 
Link to Resource: https://www.nashp.org/state-medicaid-and-chip-strategies-to-protect-coverage-during-covid-19/ 

CARES ACT

Name: What COVID-19 Diagnostic Testing and Preventative Care Coverage Is Included in the CARES Act? 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/COVID-19-CARES-and-Diagnostic-Testing.pdf 

Name: What Does the CARES Act Offer Regarding Income Supports due to Unemployment? 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-CARES-Act-Income-Supports-Unemployment.pdf

Name: What Was Included in the CARES Act About Sick Leave and Family Leave? 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-Sick-Leave-Family-Leave.pdf

POLICIES SHAPING DELIVERY OF TELEHEALTH SERVICES

State Level

* New Name: States Expediting Licensure for Inactive/Retired Licensees in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Federation of State Medical Boards (FSMB)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.fsmb.org/siteassets/advocacy/pdf/states-expediting-licensure-for-inactive-retired-licensees-in-response-to-covid19.pdf

* New Name: States Waiving Licensure Requirements/Renewals in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Federation of State Medical Boards (FSMB)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.fsmb.org/siteassets/advocacy/pdf/state-emergency-declarations-licensures-requirementscovid-19.pdf

* New Name: COVID-19 Related State Actions Telehealth
Type of Resource: Website
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/resources/covid-19-related-state-actions

* New Name: Quick Glance State Telehealth Actions in Response to COVID-19
Type of Resource: Guide
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/sites/default/files/2020-03/STATE%20TELEHEALTH%20ACTIONS%20IN%20RESPONSE%20TO%20COVID%20OVERVIEW%203.29.2020.pdf

National

* New Name: Physicians and Other Clinics: CMS Flexibilities to Fight COVID-19
Type of Resource: Guide
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/files/document/covid-19-physicians-and-practitioners.pdf

* New Name: Telehealth & COVID-19- Includes CARE Act Updates & CMS Guidances
Type of Resource: Webinar
Resource Developed By: Center for Connected Health Policy
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cchpca.org/resources/search?type[186]=186

* New Name: COVID-19 Maternal and Child Health Bureau Frequently Asked Questions
Type of Resource: FAQ,Website
Resource Developed By: Health Resources and Services Administration (HRSA)
Intended Audience: Regional Genetics Networks
Link to Resource: https://mchb.hrsa.gov/coronavirus-frequently-asked-questions

Name: HIPAA Compliance and COVID-19 Coronavirus
Type of Resource: Fact Sheet
Resource Developed By: HIPAA Journal
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.hipaajournal.com/hipaa-compliance-and-covid-19-coronavirus/

Approved Modalities for Telehealth
Under this Notice, covered health care providers may use popular applications that allow for video chats, including Apple FaceTime, Facebook Messenger video chat, Google Hangouts video, or Skype, to provide telehealth without risk that OCR might seek to impose a penalty for noncompliance with the HIPAA Rules related to the good faith provision of telehealth during the COVID-19 nationwide public health emergency. Providers are encouraged to notify patients that these third-party applications potentially introduce privacy risks, and providers should enable all available encryption and privacy modes when using such applications.

Under this Notice, however, Facebook Live, Twitch, TikTok, and similar video communication applications are public facing, and should not be used in the provision of telehealth by covered health care providers

Name: Telehealth and COVID-19
Type of Resource: Webinar
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Health Care Providers
Link to Resource: https://www.telehealthresourcecenter.org/event/nctrc-webinar-telehealth-and-covid-19/

Name: COVID-19 Emergency Declaration Blanket Waivers for Health Care Providers 
Type of Resource: Guide 
Resource Developed By: Centers for Medicare and Medicaid Services (CMS) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.cms.gov/files/document/summary-covid-19-emergency-declaration-waivers.pdf 

Name: Frequently Asked Questions for Hospitals and Critical Access Hospitals regarding EMTALA 
Type of Resource: FAQ 
Resource Developed By: Centers for Medicare and Medicaid Services (CMS) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.cms.gov/files/document/frequently-asked-questions-and-answers-emtala-part-ii.pdf?utm_source=Telehealth+Enthusiasts&utm_campaign=a5c6f08ea7-EMAIL_CAMPAIGN_2020_05_04_09_50&utm_medium=email&utm_term=0_ae00b0e89a-a5c6f08ea7-353223577 

Name: What Telehealth Policy Provisions Are Included in the CARES Act? 
Type of Resource: Fact Sheet 
Resource Developed By: Catalyst Center 
Intended Audience: Title V,Public Health 
Link to Resource: https://ciswh.org/wp-content/uploads/2020/06/Covid-19-CARES-and-Telehealth-Policy.pdf 

Name: COVID-19 Related State ACtions 
Type of Resource: Website 
Resource Developed By: Center for Connected Health Policy 
Intended Audience: Genetics Providers,Public Health,Patients and/or Families,Non-Genetics Providers 
Link to Resource: https://www.cchpca.org/covid-19-related-state-actions 

 

AVAILABILITY OF TELEHEALTH SITES

* New Name: US Directory of Service Providers for Telemedicine and Telehealth
Type of Resource: Web Site
Resource Developed By: Arizona Telemedicine Program, Southwest Telehealth Resource Center
Intended Audience: Genetics Providers,Non-Genetics Providers,Administrators
Link to Resource: https://telemedicine.arizona.edu/servicedirectory

* New Name: Global COVID19 Telehealth Directory**
Type of Resource: Google Doc
Resource Developed By: Kanupriya Agarwal, Karan Kataria
Intended Audience: Genetics Providers,Non-Genetics Providers,Administrators
Link to Resource: https://docs.google.com/spreadsheets/d/1XMsJJIduO6yI_GEo1Vy_b_SXoz9YwbgtEL63-siNS_Q/htmlview

**Disclaimer: for public informational purposes only, and support during COVID-19. Information herein not endorsed nor discredited. Utmost care taken to provide accurate and updated information. May not be exhaustive nor complete. No personal or financial liability. -- Kanupriya Agarwal, Karan Kataria (Owners).

IMPROVING YOUR TELEHEALTH SERVICES

* New Name: Telegenetics Tips for Practice and Supervision
Type of Resource: Infographic
Resource Developed By: GC Twitter Users
Intended Audience: Genetics Providers,Educators,Students
Link to Resource: https://drive.google.com/file/d/1_-RFU7FsOnPLzV6cqe6Z91qIvza2qF2s/view

Name: Telehealth Etiquette Checklist
Type of Resource: Checklist
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthresourcecenter.org/wp-content/uploads/2019/07/Telehealth-Etiquette-Checklist.pdf

Name: Telehealth Best Practices
Type of Resource: Video
Resource Developed By: Western States Regional Genetics Network
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.youtube.com/watch?v=lQx0SDh9Jc0&feature=youtu.be

Name: Telehealth Coordinator E Training
Type of Resource: Web Resource
Resource Developed By: California Telehealth Resource Center
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthtrain.org/

STARTING UP TELEHEALTH SERVICES

* New Name: 2020 Medicare Learning Network Telehealth Services Booklet
Type of Resource: Guide
Resource Developed By: Centers for Medicare and Medicaid Services (CMS)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.cms.gov/Outreach-and-Education/Medicare-Learning-Network-MLN/MLNProducts/Downloads/TelehealthSrvcsfctsht.pdf?utm_source=Telehealth+Enthusiasts&utm_campaign=33c8baa213-EMAIL_CAMPAIGN_2020_03_24_07_01&utm_medium=email&utm_term=0_ae00b0e89a-33c8baa213-353223577

Name: Equipment to Start Doing Telehealth Quickly
Type of Resource: Guide
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.westernstatesgenetics.org/wp-content/uploads/2020/03/Telehealth_Equipment_List.pdf

Name: Checklist for Initiating Telehealth Services
Type of Resource: Checklist
Resource Developed By: Great Plains Telehealth Resource and Assistance Center
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.telehealthresourcecenter.org/wp-content/uploads/2019/07/checklist190508-gpTRAC.pdf

Name: Sample Telehealth Consent Language
Type of Resource: Guide
Resource Developed By: Western States Regional Genetics Network (WSRGN)
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.westernstatesgenetics.org/wp-content/uploads/2020/03/Sample_telehealth_consent_language.pdf

Name: Mapping and Designing Telehealth Clinic Workflows
Type of Resource: Webinar
Resource Developed By: National Consortium of Telehealth Resource Centers
Intended Audience: Genetics Providers,Non-Genetics Providers
Link to Resource: https://www.youtube.com/watch?v=ZfcEdT5ZRD0&feature=youtu.be

ADDITIONAL RESOURCES

* New Name: Weitzman Institute COVID-19 Resources – Caring for Key Populations, Cases and Questions, Complex Integrated Pediatrics, Managing Workflow, Emergency Preparedness, Telehealth Strategies
Type of Resource: Recorded ECHO Series
Resource Developed By: Weitzman Institute
Intended Audience: Non-Genetics Providers
Link to Resource: https://www.weitzmaninstitute.org/coronavirus

Additional Resources on Telehealth Curated by the Western States Regional Collaborative: https://www.westernstatesgenetics.org/telehealth-resources/

DIVERSE AND MEDICALLY UNDERSERVED COMMUNITIES

Name: Webinar Recording: Addressing the Needs of Medically Underserved Populations 
Type of Resource: Video 
Resource Developed By: Heartland Regional Genetics Network (Heartland),National Genetics Education and Family Support Center (NGEFSC) 
Intended Audience: Public Health,Regional Genetics Networks 
Link to Resource: https://youtu.be/PgdfrwnqbMg 

Name: Webinar Slides: Addressing the Needs of Medically Underserved Populations 
Type of Resource: Presentation 
Resource Developed By: Heartland Regional Genetics Network (Heartland),National Genetics Education and Family Support Center (NGEFSC) 
Intended Audience: Public Health,Regional Genetics Networks 
Link to Resource: https://nccrcg.org/wp-content/uploads/Reference-Guide-Webinar-Slides.pdf 

Name: Eliciting culturally and medically informative family health histories from Marshallese patients living in the United States 
Type of Resource: Journal Article 
Resource Developed By: Heartland Regional Genetics Network (Heartland)
Intended Audience: Genetics Providers,Non-Genetics Providers,Patients and/or Families 
Link to Resource: https://onlinelibrary.wiley.com/doi/full/10.1002/jgc4.1249

PROVIDING SERVICES

Name: ECHO Series, and Genetics Webinar Series, in collaboration with The Weitzman Learning Academy 
Type of Resource: Webinar 
Resource Developed By: Weitzman Institute,New England Regional Genetics Network (NERGN) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.weitzmanlearning.org/genetics/ 

Name: Providing Services via Telephone during COVID-19 
Type of Resource: Video 
Resource Developed By: Center for Connected Health Policy 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.youtube.com/watch?v=Z4RJ4OcsrSc&feature=youtu.be 

Name: Genetic Counseling in the Time of COVID-19 
Type of Resource: Blog 
Resource Developed By: Centers for Disease Control and Prevention (CDC) 
Intended Audience: Genetics Providers 
Link to Resource: https://blogs.cdc.gov/genomics/2020/05/22/genetic-counseling-3/ 

ENRICHMENT MATERIALS

Name: DNA Today: A Genetics Podcast 
Type of Resource: Podcast 
Resource Developed By: DNA Today 
Intended Audience: Genetics Providers,Non-Genetics Providers,Regional Genetics Networks 
Link to Resource: http://dnapodcast.com/ 

Name: Public Health Genetics Week 
Type of Resource: Website,Awareness Campaign 
Resource Developed By: National Coordinating Center for the Regional Genetics Networks (NCC) 
Intended Audience: Patients and/or Families,Public Health,Genetics Providers,Educators,Non-Genetics Providers,Regional Genetics Networks,Policymakers,Insurers,Administrators,Healthcare Interpreters,Midwives,Students 
Link to Resource: https://phgw.org 

Name: What is Public Health Genomics? A Day in the Invisible Life of Public Health Genomics 
Type of Resource: Blog 
Resource Developed By: Centers for Disease Control and Prevention (CDC) 
Intended Audience: Patients and/or Families,Policymakers,Students,Genetics Providers,Non-Genetics Providers,Regional Genetics Networks 
Link to Resource: https://blogs.cdc.gov/genomics/2011/06/02/what-is-public-health-genomics-a-day-in-the-invisible-life-of-public-health-genomics/ 

Name: Wisconsin Genetic Counselors Association 
Type of Resource: Website 
Resource Developed By: 
Intended Audience: Regional Genetics Networks,Genetics Providers,Non-Genetics Providers,Students 
Link to Resource: https://www.wigca.org/ 

Name: Common Cancer Testing Terminology 
Type of Resource: Website,White Paper 
Resource Developed By: National Society of Genetic Counselors (NSGC) 
Intended Audience: Non-Genetics Providers,Genetics Providers 
Link to Resource: https://www.commoncancertestingterms.org/ 

Name: Jackson Laboratory: Cancer Genetic Clinical Education 
Type of Resource: 
Resource Developed By: The Jackson Laboratory 
Intended Audience: Genetics Providers,Students 
Link to Resource: https://www.jax.org/education-and-learning/clinical-and-continuing-education/cancer-genetic-clinical-education?utm_source=Organization&utm_medium=Email&utm_campaign=CGCE%20outreach 

Name: Adopting consistent terms for genetic testing in precision medicine 
Type of Resource: Website 
Resource Developed By: National Society of Genetic Counselors (NSGC) 
Intended Audience: Genetics Providers,Non-Genetics Providers 
Link to Resource: https://www.nsgc.org/p/bl/et/blogaid=1212?utm_source=Twitter&utm_medium=Social&utm_campaign=Adopting%20consistent%20terms%20for%20genetic%20testing%20in%20precision%20medicine 

Name: What is a Genetics Nurse? 
Type of Resource: Website 
Resource Developed By: International Society of Nurses in Genetics (ISONG) 
Intended Audience: Non-Genetics Providers,Patients and/or Families 
Link to Resource: https://www.isong.org/page-1325153 

Name: Clinical Research Education in Genome Science (CREiGS) Short Course 
Type of Resource: Short Course 
Resource Developed By: CREiGS 
Intended Audience: Researchers,Educators 
Link to Resource: https://www.creigs.org/