Navigating Insurance & Appeals

The Healthcare Access and Financing, Medical Home and Education and Dissemination work groups of the NEGC developed resources for families and providers on how to appeal health care insurance claims denials. Links to external resources are also provided.


Helpful links:

  • Family Voices
    Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. 
    Age Group: Child, Teen/Young Adult
  • Maneuvering Through the Maze, a Family Resource Guide for Families having Children with Special Health Care Needs and Disabilities. New Hampshire Family Voices
  • Pathways to Reimbursement Success
    Cambrooke Therapeutics (includes several LMN for medical food, seizure disorder, PKU and other metabolic conditions)
    Age Group: All
  • Rare Toolkit: Navigating Health Insurance
    From Global Genes,  one of the leading rare disease patient advocacy organizations in the world
    Age Group: Child, Teen /  young adult, adult